

Internal constriction (ie: pharmacological interventions).Key: the more surface area covered, the more compression of blood back to your core.Compression socks, pants, sleeves, abdominal binder.Muscle atrophy and weakness in the abdomen/core and legs.Develop a heightened sense of awareness about the threshold of relapse, and the consequences of pushing beyond it.Īctivity logs, heart rate monitors, smart watches, and the Oura Ring are all helpful tools to give immediate/daily/weekly/monthly feedback on activity and pacing.Try not to ruminate on the crash, but rather set aside time for body/energy check-ins and structured rest time moving forward.If PEM is induced, it is crucial that you rest until it resolves.

The goal of pacing is to feel “back to baseline” the following morning after a night of restorative sleep.Ideally, engage only in the amount of activity that doesn’t induce PEM in 24-48 hours.“Pacing” reduces the frequency and severity of PEM and improves both symptoms and function. The more debt accrued, the longer it will take to pay off the ‘energy debt.’ Create a self-awareness on when you are accruing PEM debt, and acknowledge that it needs to be paid off as soon as possible.Avoid accumulating significant PEM debt.Engage in recovery behaviors between activities:.Engage in short activities, which are spread out through the day.The most important primary intervention for ME/CFS is activity management (pacing), which includes management of physical, cognitive, emotional, and orthostatic stressors. The direct and indirect economic costs of ME/CFS on a societal level, have been estimated between $17-$24 billion annually, including $9.1 billion attributed to lost household and labor force productivity. At least one-quarter of ME/CFS patients are house – or – bedbound at some point in their lives. The severity of illness ranges from mild to profound in disease presentation. The cause of the disease remains unknown, although in many cases, symptoms may have been activated by an infection, virus, or some other triggering event. ME/CFS can severely impair a patients’ ability to conduct their normal lives, yet many struggle with symptoms for years before receiving a diagnosis. It is estimated that ME/CFS affects upwards of 3 million Americans, 80% of which remain undiagnosed, even after years of cycling through specialty care. Myalgic encephalomyelitis/chronic fatigue syndrome, commonly referred to as ME/CFS, is a disease characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, autonomic manifestations, pain, and other symptoms that are made worse by exertion of any sort (physical, cognitive, emotional, orthostatic stressors). What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?
